Something that I do not see written about much in relation to Chronic Fatigue Syndrome (CFS), Postural Orthostatic Tachycardia Syndrome (POTS) and other chronic illnesses, is body image and getting fit. Obviously, it is not the highest priority when you are struggling to gain a good quality of life, so it doesn’t feature so much in […] Read more…
Hashimoto’s disease
Glimpse into another diagnosis – POTS & RBBB
My health journey has taken another turn in the past fortnight. Mid February, I visited a cardiologist, after having had a tilt table test performed in December, and discovered that I have Postural Orthostatic Tachycardia Syndrome (POTS). This explains a great deal, such as the light headedness, dizziness, palpitations, low blood pressure, nausea, brain fog and fatigue. It is […] Read more…
Glimpse into Motivation Monday – week 8 2014
This week’s Motivation Monday… This is especially apparent in chronic illness, due to the ongoing unwell times and loneliness, and then the stressful visits to doctors, endless tests, worry about employment and your lack of independence, and how you will get your life back on track, the loss of friends, and life plans and […] Read more…
Glimpse into Motivation Monday – week 7 2014
Welcome to the new blog series… Motivation Mondays! To get things started, here is an idea to think about this week…. “Do not wait until the conditions are perfect to begin. Beginning makes the conditions perfect.” A big part of having a chronic illness is waiting. Waiting for answers, waiting for results, waiting for improvements. […] Read more…
Glimpse into the New Year
Today is New Year’s Day. A day typically dedicated to reflection and statements of intentions. Every New Year for the past 3 years, I have made New Year’s resolutions. These have all revolved around my health and improving its state of deterioration, which had begun to speed up between 2008 and 2010. Each year, I felt more determined […] Read more…
Glimpse into brain fog
Something that a lot of people ask me about or don’t understand, is the feeling of “brain fog”, which is so prevalent in conditions like Myalgic Encephalmyeltis. Obviously, brain fog is not a scientific term, but it so clearly depicts the feeling. Pic taken from here Your mind is blanketed with London-like, pea soup fog; […] Read more…
Glimpse into my thoughts about chronic illness
I have chosen to write 5 things I hate about having a chronic illness, 5 things that help put a positive spin on chronic illness, and 5 things I still need to learn from or about living with chronic illness. I hope this helps people feel less alone, get some ideas, or understand other people’s situation… […] Read more…
Glimpse into Chronic Fatigue Syndrome
A couple of weeks ago, I went to see my doctor, and came out feeling like we had had a break though. I have been seeing him for close to a year now, and he has tested me for so many conditions in an attempt to explain my symptoms. I have had several tests come […] Read more…
Glimpse into defining ourselves through illness
I read some advice recently about not letting your illness define you. This initially sounded logical, and quite a basic instinct. However upon mulling it over, I started questioning the feasibility of this concept, when you are deep in the throws of a chronic condition. If being defined means to describe the nature or basic qualities […] Read more…
Glimpse into the misconceptions surrounding pushing through chronic illness
This morning, my mum and I were talking about people’s perceptions of you when you have a chronic health problem. I know that I have touched on this before, but when you are living with an ongoing issue, it is tough enough without having to deal with people’s misconceptions and judgements. We came to the […] Read more…